Greetings from Virginia

It’s Not Just Alzheimer’s: Design for the Cognitively Impaired and Stealthy Aging , a two-part series.

With this series, I want to explore areas of design that most of us rarely talk or think about until confronted by stark reality - design for the physically or mentally imapired. Noting statistics that the 1st boomers turned 65 in 2011, many of whom are caring for aging parents, 100 million people are looking for homes that don’t exist – i.e. that do not meet their needs considering the physical, mental and financial challenges that they are facing today. By 2050, 80 million or roughly 1-5 will be over 65. Of those, 89% who are now over 45 will want to remain in their homes, 80% will require special housing needs, and where you live at 65 will be where 70% live for the rest of their lives.

In October of 2011, the Washington Metro Chapter of ASID presented two Continuing Education courses at the Washington Design Center related to ongoing health issues. It was my priviledge to help organize these courses which were presented by Drue Ellen Lawlor, FASID, of education-works, inc., Dallas, Texas, who spoke to approximately 40 designers and architects with the purpose of providing functional and compassionate design for those who have special challenges due to aging, disease or traumatic injury.

For starters:

Universal Design is defined as "the design of products and environments to be used by all people, to the greatest extent possible, without the need or adaptation of specialized design."

With that in mind....

Part I of this series: It's Not Just Alzheimer's: Designing for the Cognitively Impaired focuses on Mental and Physical Dysfunction, which can be the result of aging (dementia), blunt trauma, Parkinson’s disease, and a myriad of other diseases, accidents or genetic defects. To mitigate these, the American Disabilities Act was passed in 1993 and has made significant strides forward since that time, most notably with the creation of Universal Design which must be intuitive while providing equitable use and flexibility. With Wounded Warriers returning from Iraq and Afganistan even greater strides are being made in this arena as evidenced by the partnering of the military with noted architect Michael Graves, who is wheel-chair confined, to provide user friendly housing for veterans.

Because those with Mental and Physical Impairments have different sensory perception from "normal" functioning beings, we must focus on Involvement of the Senses which include Smell, Sight/Vision & Light, Hearing and Touch.

Smell is the 1st sense and as such it is necessary to provide comforting scents such as cookies rather than detrimental scents such as perfumes.

Sight -Vision & Light:
Lighting is a major issue for not only those with cognitive disabilities but for the general aged population. It is imperative to provide adjustable, natural and artificial light without glare. This is true for vertical surfaces as well as horizontal surfaces in order to eliminate confusion or disorientation.

With the aged, the perception of color changes as the eye lens yellows which makes it easier to see primary and clear colors. To produce the healing power of full spectrum colors (those found in nature) it is best to balance or blend the 7 basic colors: red, blue, yellow, green, violet, orange, and white.

In addition, Evidence Based Research indicates that "mood" lighting can be frightening when objects and art can lack visual acuity, with features that can be misinterpreted causing confusion. Dementia patients often misinterpret floor or ground patterns to create a syndrome called "Visual Cliffing" in which they "stall" while walking and suddenly stop. There is an excellent example, in a chapter of the novel, "Still Alice," about a Harvard professor who suffers early onset Alzheimer's, where the central character perceives a rug in her foyer as a "hole" that she fears she will fall into.

While much of the following is meant for institutional settings, some of the following points can be applied to home use.

In terms of lighting criteria, "Homelike Settings" as opposed to "Institutional Settings" should be incorporated into the patients environment. To diminish confusion, levels of illumination should be raised. There should be gradual changes of light level during a transition period to avoid "sundowning" syndrome or agitation. To avoid "sundowning" syndrome, research indicates that it is best to turn lights on before it gets dark outside. Additional points of interest demonstrate that gradual changes in light evels should be made from public to private spaces.

Adjustable window treatments: staff or home health care providers may be required to do this with remote control. Do not allow loose cords as patients can tangle or pull the treatment down.

We all know elderly individuas who have had traumatic falls. To help avoid these mishaps it is necessary to provide contrasting colors for visual acuity in the following areas: Toilets, Furniture, Floors/Walls, Countertops and Stair treads (using different tones for treads and risers).

Pattern is interesting in that certain fabric or wallpaper patterns can be problematic for those working with mentally impaired patients. Flame stitch patterns provide too much "movement," while stripes are symbolic of the illusion of prison or jail cells. Challenging for upholstery is a process called "picking," during which patients try to "pick" fruit, flowers, or textures because they think they are real.

Touch, as with all humans, is important. It is therefore compassionate to provide soft throws or accessory pillows – something to hold. The low cost provides something which makes a big difference.

Hearing and Auditory senses include noise from music, TV, phones, HVAC, and the like. To mitigate these disruptive factors it is wise to provide soft surfaces that can diminish noise and avoid hard surfaces that reflect noise, combine aesthetics with function, and in institutional settings stagger corridor doors across from each other in hallways.

Sensory Deprivation is learning dysfunction where no new learning takes place and should be avoided by providing variety without confusion.

The following bullets highlight some of the challenges of working with a cognitively impaired patient and how to make appropriate decisions for a loved one.

Space Planning

  Home – create a safe wandering path

  Group Home – 30% less wander than in nursing home apartments

  Redirect means of egress

  Rearrange furniture for reduced stress (by making arrangements with very simple and fewer choices as to which way to move)

  Create camouflaged doors (that might look like bookshelves) so that the patient will not
"escape" or wander off

  Large facilities:
Home to “Neighborhood Village” concept
Need to eliminate dangerous options for wandering

Wayfinding

  To allow for the reading of surroundings

  To know where they are

  To make appropriate decisions

  To reach destination

Cueing

  pictures, lettering, numbers (for staff as patients will not relate to numbers), shadow boxes

Incontinence (underlying reasons)

  environmental confusion - patient does not know where he/she is

  can’t find bathroom/time factor

  is a challenge to the cognitively challenged person as well as a challenge to the medical staff

Dressing

  Simplicity and organization become key

  Decisions on what to wear can become difficult – provide the patient with multiples
of the same outfit (for cleaning purposes) so they are not wearing soiled clothes

  Arrange the patient's hangars in order of “putting on”

  Closet – design or arrange so the patient sees only one side at a time for limited choices

Reasoning Dysfunction

  Rummaging/hoarding

  Key interventions: protect valuables so that they are easier to discover when items go missing. Look for hiding places: seal off garbage disposal, ovens, etc.

  Eliminate dangerous places to hide or rummage

  Create a place to “rummage” that will satisfy patient

Bathing (one of most challenging issues)

  Change in senses

  Loss of control

  Privacy

  Fear of safety

Reflections and Mirrors

  Mirrors can be a source of confusion: illusion of infinity; patient sees a stranger looking back at them (when looking at themselves)

Catastrophic Reactions

  Outbursts are not unusual

  Staff or caregivers need an escape plan or route if patient becomes violent

Furnishings

  Must be sturdy and able to take abuse

  Beds should be low, standard size twin beds, not dorm size

  Case goods of dry construction

  Tables and chairs – heights of seats, arms and table height must mesh

  Upholstery should sit high and firm enough do that it is easy to get in and out of

  Fabrics – Crypton (great for residential as well as commercial) and high performance fabrics should be used

  Front door (European concept) - replicate former front door on room door so patient knows this is his/her “home”

Window Treatments

  Eliminate cords which can be used to pull treatment down

  Valence on top – can recess blinds (remote automated by staff only)

  Drapery rods need to be break-away for drapery treatment

Finishes

  Non-reflective paint

  Walls: eggshell (washable)

  Trim: semi-gloss

  Stains: semi-gloss or satin

  Wallcover – contract, washable, anti-microbial – no pattern

Floors

  Patterned carpets are not good (disorienting)

  FLOR tiles are good because they can be changed out if accidents occur– great selections

  Non-slip materials

Ceilings

  Acoustical tile or other soft surface

  Rotundas are not good – create too much noise reverberation.

 

Endings...

Design is not just what it looks like. Design is how it works. - Steve Jobs

Until next time, thank you for reading.

Nancy West, ASID

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